Last week, I reminded you about a few of the topics covered in the first six months of 2022. So now I have an easy action for you: let me know what else you would like me to address. Or would you like to write a guest post about something you’ve experienced in dealing with chronic hypophosphatemia or the medical community? Drop me a note: gin at ginjones dot com.
And if you’re looking for something else to read be a more well-informed patient/caregiver, check out the Twitter hashtag #ICCBH2022 to see real-time reporting from the International Conference on Children’s Bone Health, held this year in Dublin on July 1. Be sure to choose the “latest” option instead of “top,” which will make it easier to sort through relevant material. When you get to the posts from July 1, you’ll see pictures from the XLH Symposium during the event, with an outstanding lineup of experts, plus patient-representatives from … I believe it was fourteen different countries. If you’re not already following the International XLH Alliance, I highly recommend it — they, and their member groups, are doing great work! You can also find them on Instagram and Facebook.
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Please note that the author is a well-read patient, not a doctor, and is not offering medical or legal advice.
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