This week I’m sharing some light beach reading for your summer vacation. Okay, I lied, and it’s not really light reading, but it’s still worth your time if not perhaps while on vacation! It’s unlikely that your clinicians (unless you see top experts) will know about the most recent XLH research, since there’s a lot…
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What do you know about XLH?
In honor of summer, when everyone seems to be busier than ever, I’m going to at least try to keep the next few entries a little shorter than usual. Today, a quick reminder about the research being done as a collaboration between The XLH Network, Inc. and Quinnipiac University’s Frank Netter School of Medicine on…
International XLH awareness day
Saturday is International XLH Awareness Day, and the community needs you to do your part in letting the public know what it’s really like to live with XLH. The XLH Alliance has done the hard work, putting together informative graphics about the “best care” for XLH, taken from both medical literature and a survey of…